Archive for month: December, 2012

Chemo Treatment #9: Manscaping

28 Dec 2012
December 28, 2012

I had my ninth  (out of twelve) chemo treatment on Wednesday. It was pretty standard – no big news or events to report. Things continue to be pretty routine.

I did have my first meeting with my new oncologist yesterday; prior to this, I’d just met her long enough to shake hands. We went over my case history, how I’m reacting to treatment, and I asked a few questions to get some clarification about the schedule of things once my treatments are over in February.

Once my chemo’s done, I go into a monitoring routine, which ultimately lasts five years. For the first few years, I come in four times a year. At those appointments, they’ll take some blood and monitor a couple of values that are markers for tumors/cancer and check in on how I’m feeling. After the first 2-3 years, I’ll switch to coming in twice a year instead of four times.

I’ll have a CT scan annually, and at least for the first year or two, will probably have a colonoscopy annually. After that, I’ll need to get one roughly every three years.

If I hit five years with no recurrences of any kind, then they consider me cured, and I’m really done.

The other thing that she mentioned that was a little different from what I’d heard before was about my port. She said that they usually like to leave it in for 4-6 months after my treatment is done, just in case any immediate post-op tests show that we need to take additional treatment action. I’d previously heard that it’d come out about a month after my treatment is over, so I’ll be asking about this again as my chemo ends and I have the first one or two follow up visits.

The only other semi-interesting part of this treatment was that I finally decided to take some action to make one part of the process a little more comfortable. I have a pretty hairy chest, and that means that every time I get disconnected from my port, there’s the whole adhesive + chest hair = an undesired, free, poorly-done waxing on one four-inch square of my chest.

So, armed with a shaver, I took my fate into my own hands and shaved part of my chest so that it’ll hopefully be more comfortable as I’m moving around (no pulling of hair as I twist and turn) and when the needle ultimately gets removed on Friday. We’ll see how it goes. In the meantime, I also got to take a pitcure of what my port looks like, for anyone who’s interested (the pic at the top of this post).

Other than that, things were pretty normal. My blood counts continue to drop slightly. My platelets are down to 87 – normal is 150, and my white blood cell counts are also low, so my oncologist warned me to keep Purell nearby and not get any head wounds (which translated into no skiing or skateboarding, but it sounded weird at first).

I actually slept through most of my infusions. For some reason I hadn’t slept very well the night before, and we had to be at the hospital at 8:15, so I was tired. Add a couple of warm blankets that they have available and I dozed off for most of the time I was there.

75% done. Only three more to go…

 

Two Lists

18 Dec 2012
December 18, 2012

I recently listened to Tig Notaro’s set where she talks about losing her mom and having cancer. It’s a great set, and you should go get it if you haven’t heard it.

In it, she talks about the fact that her mom had an illness and died in the hospital. Shortly thereafter, her mom received a “how was your stay” survey from the hospital by mail. I got one of these surveys after my surgery, and I happily filled it out. Here’s the thing, though… I was still alive.

Tig talks about the need for a very simple system: two lists. One for the people that are alive, and one for the people who’ve died. Then, you only send the surveys to the people on the first list.

Cut to yesterday afternoon…

I was at work, and my cell phone rang. By now, I’m able to recognize the area code and exchange of “my” hospital, so I pick it up, thinking it’s my doctor’s office calling about an upcoming appointment.

Instead, I spent the next few minutes talking with Brenda. Brenda was very friendly, and had her script very well rehearsed; and Brenda was calling to raise money for the hospital.

I have no doubt that soliciting donations from former patients, people whose lives the hospital has helped save, is a very effective plan. However, here’s another place where two lists are needed.

List 1: People who’ve been treated at the hospital and are now cured.
List 2: People who are still actively being treated by the hospital.

Then, just call the people on list #1.

I awkwardly answered some of Brenda’s questions (awkward since they veered into how/why I had interacted with the hospital), and then politely told her that I’d had a fair number of medical bills this year, even with insurance, and wouldn’t be in a position to make a donation at this time. She completely understood, but did I know that any amount helps, and the number of donors affects their success with grant applications, etc.? Would I be able to participate at any level…?

I finally had to be really blunt, and a little obnoxious, and say, “look, I’m going to have about ten thousand dollars in medical bills this year, so I’m really not in a position to make a donation of any amount to the hospital. Thank you and goodbye.”

Two lists… that’s all I’m saying.

 

Chemo Treatment #8: 66.666666666666666667%

17 Dec 2012
December 17, 2012

Sadly (or perhaps happily), dear readers, I have nothing exciting to share with you about my latest chemo treatment this past Wednesday. It was number 8 out of 12, so I’m now 2/3 of the way through. One more in December; two more in January; and one more in February, and then I’m done. I’m definitely seeing the light at the end of the tunnel, but I wish it was over already.

Overall, things went pretty smoothly this time around. My blood counts were “borderline” enough that my nurse had to check with the oncologist as to whether or not it was okay to proceed (my platelets continued to trend downward – down to 92 this time), but once we got the okay everything went pretty normally. I was done in a little over four hours, which is normal, and headed home.

I slept a lot this past weekend. Despite this being my eighth treatment, I still feel like I’m trying to figure out what combination of medication works best for me. I find that the more I sleep, the better I feel, even on my bad days. And my body pretty much wants to sleep, so it’s not hard to do.

Case in point: Friday I got disconnected from my portable pump at 2pm. I signed off from work around 4pm and napped between 6-8pm. Then, I went to bed around 10:30 and slept until after 1pm on Saturday. Saturday night I went to bed between 10-11 and slept until around noon on Sunday.

So, not a very productive weekend, but I felt better, and on Sunday had much less nausea and discomfort than I normally have.

Four more to go…

 

Biopsy-versary

02 Dec 2012
December 2, 2012

XKCD is a web comic that I really enjoy authored by Randall Munroe. It’s smart, funny, and often tech-related. Two years ago Randall’s then fiance was diagnosed with cancer. There’s been a few of his comics in the course of the last two years that I’ve thought were heartwarming, sad, or just emotional.

His comic from last week, on the two year anniversary of his wife’s diagnosis, introduces the “Biopsy-versary“, which makes me wonder how we’ll be celebrating my biopsy-versary next June. The fifth panel is also something I’m totally guilty of.

One of his comics from last year hits home with me now way more than it did then. Shift this timeline by two years and it’s a fairly accurate picture of my mind, too:

XKCD: Emotion – http://xkcd.com/1048/

 

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